Cheer up

This week is supposedly the most depressing week of the year. I can say that I have certainly felt that way. Ever looming is the start of my ivf. I have no idea what to expect. Will the price be competitive? Will i be able to afford it? Will I need to consider making my eggs into embryos? what will that mean?

All these questions have been spinning and spinning. I know they will be answered in time, but as with many aspects of my life.. crossing bridges when they come has never been a strength of mine.

This week a group of us with MRKH have decided to meet up in Cardiff. I am looking forward to it but also worried to hear about others struggle to get funding and go through the process. I am at the start of the journey and know that there is a battle ahead. Part of me does not want to know how ferocious the battle will be.

I have finally managed to draft the letter to the ccg. I am also going to go to my mp as i cannot just sit aside will some women get IVF cycles and others do not. I pay my taxes as the next person. I understand that the NHS is stretched but I expect the same service as the next person in the country. I do not want to be discriminated against.

I have finally managed to write this letter as I have actually won one of my battles recently. The council when we bought our house put us on band c whereas others in the area are band b. I did not think that I would be able to win so this was a nice surprise. I wanted to frame it. A battle won but the war is still yet to be determined.

I am finding that pushing myself to do all this is very hard. I have become even more overly critical and pursue to be perfect. I know this is counter productive and that I should just concentrate on being happy., At the end of the day how many people at their death regret their life pressures. I doubt many.

I somehow need to learn to move forward. This process is not going to be a short one. but how does one compartmentalize without going mad. So much is riding on a few people and I have no control. I am just waiting on them to decide my fate. and to know that they have probably become desensitized with the number of people they see but I need them on my side.

I need them to be caring and motivated in order to get done what needs to be done and to give me the best opportunity of having a gorgeous baby.

a baby. I suppose it seems all so surreal to me. I cannot imagine going through surrogacy. I just am starting a journey I cannot even contemplate.

thank you for reading this week’s blog.
It will get better and we will all succeed

The thoughts that never far away

As I promised in my last post I am going to start posting regularly. I have even been diligent enough To put an alarm on my phone.

I am currently away skiing this week. Even while in this beautiful environment the thoughts of IVF are never far away. How can you distract yourself? 

I must admit i am finding skiing hard especially on the muscles. Part of me is just finding it hard that I cannot do it and am stupidly linking it to my feelings of inadequacy relating to MRKH.

I know it is wrong to link these but when yourself worth is already delicate this is just increasing the anxiety.

I hate the waiting of IVF. I remember when I first got diagnosed and the waiting between appointments and the unknow future was torture. The start of this journey feels very similar but this time there is a lot of finances at stake.

Within my district the NHS ccg has decided they are not going to give me any funding support. I have queried and other people do get cycles on the NHS. Why do I not?

Why am I being doubly punished. I understand that the NHS is struggling but i pay my taxes as same as the next person. Therefore, why should i not get the same service. I just want equality and I do not see why that is unreasonable. 

These feelings are killing me. The fact that i went cold turkey on my antidepressants is just hard. People say I am more alive but I do not feel it. Anything slightly hard and I just cannot do it. It is a constant battle now, not just to deal with the “normal” MRKH feelings but the others on top.

I do hope that I will feel better especially when I get back to my home comforts and I deal with my issues of not feeling good enough and seclusion.

There will be an end and I cannot wait to start the process as at the end of the day it is exciting.

Thank you for reading. Please do feel free to message or share your feelings.